I had an appointment to see the nurse after work to check on my wound and although it was still a little bit moist in a tiny area she was happy not to put another dressing on and to let the air get to it – soooo I’m now officially discharged 🙂
Before I left I mentioned about what one of the other nurses had told me early on in my treatment. She was taking my history and when I mentioned that I had lymphoedema and lipoedema she asked if I was having doppler on my legs, when I told her that I wasn’t she said that once I had recovered I should ask my GP to refer me. The nurse that I saw today told me that that wasn’t necessary and that she could complete the referral form for me 🙂 The waiting time is 6 weeks but I would then be seen every 3 months (opposed to the 6 months that I was being seen by the hospital), I would have the doppler on my legs (never had that at the hospital), I would be prescribed 2 pairs of stockings every 3 months (opposed to every 6 months) and they would measure my legs every 3 months (opposed to 6 months).
It is now 12 months since I was seen at the hospital. I should have gone in January but there was bad snow and so the appointment was mutually cancelled. Another appointment was sent out for 8 weeks later but I was having problems getting time off work and I made the decision to discharge myself. A couple of months ago I went online and searched for the stockings that I was prescribed (I had kept the box) and I purchased 2 pairs at a cost of £50 per pair!
Although I am really happy that I am now able to be seen locally at my GPs (the hospital that could treat me is 45 minutes away), I am a little annoyed that my GP didn’t know that the district nurses would provide this service. I went over 2 years with no treatment at all, my legs were at their worst (as well as my weight) and I suffered greatly with depression as well as pain in my legs. I feel that if I hadn’t done the searching and pushing to be referred to the hospital (I didn’t know myself at the time that the district nurses could provide what the hospital was doing) that instead of being Stage I, I could be at Stage II or possibly Stage III now. Of course losing weight has helped too but even if I hadn’t been overweight (morbidly obese) then I would still have had lymphoedema and lipoedema.
If you are concerned about a health issue and told that there is nothing that can be done. Don’t take no for an answer! The internet makes it so much easier to search and find out information about possible treatments. Of course there is also a lot of rubbish health information out there and you need to be able to to differentiate the good from the bad. On the whole if a site has .org.uk (non-profit site), .nhs.uk (National Health Service site), .gov.uk (Government site) or .ac.uk (academic institution site) then you know it is an “official” site and the information is reputable.
Breakfast – OSS Original (3), Skimmed Milk (2) = 5pp
Snack – 3 x Tiny Satsumas (0) = 0pp
Dinner – 150g Asda Chicken Chunks Chilli (5), 3 tbsp Lighter than Light Mayo (1), Little Gem Lettuce (0), 1 x Pepper (0), 2 x Celery Sticks (0), Cherry Tomatoes (0), Baby Beetroot (0) = 6pp
Snack – 1 x Flat Peach (0) = 0pp
Tea – Sticky Chicken (7), 1 tsp Olive Oil (1), 100g Baby New Potatoes (2), 70g Sweetcorn (1), Paprika (0), Garlic Powder(0), Peppers (0), Onion (0) 120g Ambrosia Original Rice (3) = 14pp
Drinks – 2 x Coffee, at least 2.5 litres of water
25/26pp +0/49wp (Total of 11/49wp used)